What more can we do?

All of us that suffer want to be heard and treated by knowledgeable doctors. This needs to be on the forefront of science. Children who have this will never have an intimate sexual relationship as they get older if there is not more research and treatments that can help. Woman and men that suffer with this will continue to be in pain, suffer relationship difficulties and have terrible self esteem and emotional anguish. We need insurance companies to see this as a legitimate disease and have treatments covered by insurance. This is not for vanity but for relief and to be able to live a happy and healthy life.

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4 thoughts on “What more can we do?

  1. God Bless you for sharing and hopefully this is going to work for you as well as give us all better chances at normal lives. I’m in Alabama and Dr. Runnels is right around the corner so I plan on reaching out to him. We truly need exposure so insurance will cover this for us.

    Liked by 1 person

  2. Groot respect voor jouw!
    Ik hoop dat de oplossing gaat worden, voor deze nare ziekte! Wat geweldig, dat dit met ons lotgenoten gedeeld mocht worden! Geen woorden voor..
    Geweldig…grote dank.
    Ik hoop dat je ons op de hoogte houdt!!
    😘😘😘

    Like

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